Registration is open for ADVANCE 2022: Sanfilippo Community Conference!

A virtual conference on July 7-8, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo syndrome. Registration is at no-cost.

REGISTER TODAY here:
https://hopin.com/events/advance2022/registration

Parents and caregivers of children with Sanfilippo syndrome don’t often get to see the many people – researchers, scientists, clinicians, biotechs, and many more – brilliant people working behind the scenes in the efforts to make a difference for children. 

Additionally, many working in the field seldom have the opportunity to spend time directly with the children and families impacted by Sanfilippo to better understand what daily lives are like and to use that knowledge to enhance their work.

ADVANCE 2022 will feature high-level collaboration between the groups, information sharing, and Sanfilippo-specific learning sessions. Topics include the role of inflammation and the immune system in Sanfilippo, new treatment approaches, Sanfilippo subtype-specific sessions, ABA and Sanfilippo, and much more.

Everyone in the Sanfilippo community is welcome, U.S. and internationally. And registration for everyone is at no cost. Register today at https://hopin.com/events/advance2022/registration

We hope to see you at ADVANCE 2022!

Glenn O’Neill
Dad, Donor, President & Co-Founder
Cure Sanfilippo Foundation
803-413-0525   |   CureSanfilippoFoundation.org

Cure Sanfilippo Foundation now accepting Letters of Intent (LOI) for innovative research into Sanfilippo syndrome (MPS III)

Cure Sanfilippo Foundation seeks to support research that fills critical gaps in current knowledge across basic science, clinical care, and translational therapeutics which will ultimately improve the lives of children with Sanfilippo syndrome. Scientist-clinician-patient collaborations are highly encouraged. The Foundation is available to assist in facilitating connections with patients/caregivers to inform projects as needed. 

Sanfilippo syndrome (MPS III) is a multisystem metabolic disease with prominent neurodevelopmental and neurodegenerative consequences for affected children. There are currently no treatment options available for this terminal condition but we are working hard with the scientific community to change that! 

Deadline to Apply: Submit your Letter of Intent (LOI) using the downloadable form to: Research@nullCureSanfilippoFoundation.org,

For more information on this current funding opportunity and LOI form, we invite you to visit us at:

https://curesanfilippofoundation.org/how-to-help/for-researchers/funding-opportunities/

For additional questions, contact Cara@nullCureSanfilippoFoundation.org.