Sanfilippo Children’s Foundation 2021 grants round opens February 24, 2021

The Sanfilippo Children’s Foundation is now accepting Expressions of Interest for their 2021 Grants Round.

Important dates:
– Wednesday 24 February: Grant round opens (Expression of Interest application forms will be made available on our website)
– Wednesday 24 March: Expression of Interest due

The Sanfilippo Children’s Foundation is particularly interested in three focus areas:
– halt disease progression through therapies such as enzyme replacement, gene therapy and cell therapy and strategies to enhance the effectiveness of such emerging therapies
– repair and reverse the cell damage caused by Sanfilippo Syndrome, which could include the application of neuroregeneration advances made for other neurodegenerative diseases
– improve quality of life through palliative care and symptom management specific to Sanfilippo Syndrome

More information about our research strategy and funding program can be found on our website:

The purpose of the Sanfilippo Children’s Foundation is to drive research for a world without Sanfilippo Syndrome.

This will be achieved by:

  • Funding research which might halt progression of the condition, reverse damage caused or improve quality of life for patients with the condition;
  • Providing clear, accurate and up-to-date information to diagnosed families regarding the disease, therapeutic avenues and current research programs;
  • Raising awareness of the disease amongst the community, including the medical profession;
  • Advocating for improved outcomes for the Sanfilippo patient community;
  • Improving the diagnosis path – more accurate and earlier diagnosis to enable appropriate treatment.

Cure Sanfilippo Foundation now accepting Letters of Intent (LOI) for innovative research into Sanfilippo syndrome (MPS III)

Cure Sanfilippo Foundation seeks to support research that fills critical gaps in current knowledge across basic science, clinical care, and translational therapeutics which will ultimately improve the lives of children with Sanfilippo syndrome. Scientist-clinician-patient collaborations are highly encouraged. The Foundation is available to assist in facilitating connections with patients/caregivers to inform projects as needed. 

Sanfilippo syndrome (MPS III) is a multisystem metabolic disease with prominent neurodevelopmental and neurodegenerative consequences for affected children. There are currently no treatment options available for this terminal condition but we are working hard with the scientific community to change that! 

Deadline to Apply: Submit your Letter of Intent (LOI) using the downloadable form to:,

For more information on this current funding opportunity and LOI form, we invite you to visit us at:

For additional questions, contact