Dr. Michael Beck, Mainz GE, MPS-focused physician has passed (9/23/2022) - September , 2022: It is with great sadness that we share, Dr. Michael Beck, based in Mainz GE passed away suddenly yesterday. Carmen Kunkel from the German MPS Society reached out to me earlier this morning. Dr. Beck has served the MPS Community of GE and abroad for over four decades. He retired from the… Continue Reading


Registration is open for ADVANCE 2022: Sanfilippo Community Conference! (6/28/2022) - A virtual conference on July 7-8, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo syndrome. Registration is at no-cost.REGISTER TODAY here: Parents and caregivers of children with Sanfilippo syndrome don’t often get to see the… Continue Reading

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