Gaucher Awareness Video Premiere (8/31/2021) - The Gaucher Community Alliance is premiering its new video campaign to raise awareness about Gaucher disease during October’s Gaucher Awareness Month. The video shows the world the many ages, faces, ethnicities, languages and cultures it affects and will help medical professionals and people affected by Gaucher recognize symptoms. Join us for the premiere online, hosted… Continue Reading


Letter from Sue Kahn, Executive Director, NTSAD: Starting a new chapter after stepping down from leadership (6/7/2021) - National Tay-Sachs & Allied Diseases AssociationJune 2021   Dear NTSAD Community,    It's with mixed emotions that I share with you that after nearly 14 years, I am stepping down from my role as NTSAD’s executive director at the end of October. I am looking forward to starting a new chapter in my life, knowing that NTSAD remains strong. I will… Continue Reading


Lasting Lessons from the Pandemic: Advancing the Understanding of Special Education and Therapeutic Needs of Children with Neurodegenerative Disorders – special white paper for review (8/23/2021) - Check out this important discussion: When the COVID-19 pandemic halted in-person instruction, educators, therapists, and parents faced unprecedented challenges as they sought to maintain the delivery of educational and therapeutic services. Without any kind of model, new methods of delivering special education and therapeutic services arose out of necessity: Educators and therapists faced the burden… Continue Reading

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