Recent News

Gaucher patients in Spain turn to home-based infusions to avoid COVID-19 exposure (7/30/2020) - Home-based infusion will help patients avoid exposure to COVID-19 Continue Reading

Recent Events

2020 Virtual Fabry Family Education Conference (9/2/2020) - The National Fabry Disease Foundation's virtual Fabry Education Conference is being held on October 3-4, 2020. Primary attendees are individuals with Fabry disease, family members, and caregivers. Other attendees from clinics and support organizations are welcome and encouraged to attend. Please see the conference guide and the conference website at https://tie.link/fabry. Registration closes on September… Continue Reading

Recent Research

Research suggests mucopolysaccharidosis patients may be less vulnerable to COVID-19 (9/9/2020) - Researchers at the University of Gdańsk, Poland have conducted tests that show certain genes in the DNA of MPS patients render their cells less susceptible to COVID-19 infection than normal cells, though the typical - for storage diseases - narrowing of the respiratory tract and presence of thick mucous are still risk factors for infection.… Continue Reading

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