Recent News

RDCRN to expand (10/3/2019) - On Oct. 3, 2019, NIH announced awards to expand the RDCRN. The RDCRN is designed to advance medical research on rare diseases by providing support for clinical studies and facilitating collaboration, study enrollment and data sharing. Currently, the RDCRN consists of 20 distinct clinical research consortia and a Data Management and Coordinating Center (DMCC). Each consortium… Continue Reading

Recent Events

WORLDSymposium 2020 (1/8/2020) - This symposium is designed for basic, translational and clinical researchers, patient advocacy groups, clinicians, and all others who are interested in learning more about the latest discoveries related to lysosomal diseases and the clinical investigation of these advances. Continue Reading

Recent Research

10 present and former LDN members to present latest research at WORLDSymposium (2/5/2020) - Present and former LDN Members will present a series of studies and insights relating to lysosomal diseases at the 16th annual WORLDSymposium to be held from February 10-13, 2020 in Orlando, Florida. WORLDSymposium is designed to help researchers and clinicians to better manage and understand diagnostic options for patients with lysosomal diseases, identify areas requiring additional basic and clinical… Continue Reading

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