Sanfilippo Syndrome Clinical Care International Guidelines (10/31/2022) - These guidelines provide guidance on Sanfilippo Syndrome-specific care management and monitoring of disease-related changes. The contents of this document have been reviewed and approved by medical and scientific professionals in the field. The file can be viewed and downloaded by clicking here. A collaborative effort between Cure Sanfilippo Foundation and Sanfilippo Children’s Foundation initiated and led this project through completion, as well… Continue Reading


Registration is open for ADVANCE 2022: Sanfilippo Community Conference! (6/28/2022) - A virtual conference on July 7-8, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo syndrome. Registration is at no-cost.REGISTER TODAY here: Parents and caregivers of children with Sanfilippo syndrome don’t often get to see the… Continue Reading

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