Family feedback from WORLDSymposium 2021! (2/3/2021) - Dear Dr. Whitley and WORLDSymposium team, "I wanted to share some lovely feedback with you all regarding the ability for families to attend the meeting virtually this year free of charge ... though we'd all prefer to be together in person, this is such a great opportunity to learn how we can increase access for… Continue Reading


Rare Disease Day 2021 (2/22/2021) - This Sunday, February 28th, is Rare Disease Day, all around the world! Events will kick off Friday, February 26th, with the University of Minnesota's virtual presentation: "Telehealth in Rare Disease Clinical Practice and Research: The Silver Lining Now and Beyond COVID-19". Register for the program here. Check out other events on the official website,… Continue Reading


Sanfilippo Children’s Foundation 2021 grants round opens February 24, 2021 (2/16/2021) - The Sanfilippo Children's Foundation is now accepting Expressions of Interest for their 2021 Grants Round. Continue Reading

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