National MPS Society 2021 Research Grant: Now accepting submissions (6/30/2021) - MPS Society grants Cycle II now open for submission of Letters of Intent (LOI) due July 15, 2021 To access the National MPS Society’s Grant Submission Portal, please use the following link: Here is more information about the MPS Society's grants program. Continue Reading


Letter from Sue Kahn, Executive Director, NTSAD: Starting a new chapter after stepping down from leadership (6/7/2021) - National Tay-Sachs & Allied Diseases AssociationJune 2021   Dear NTSAD Community,    It's with mixed emotions that I share with you that after nearly 14 years, I am stepping down from my role as NTSAD’s executive director at the end of October. I am looking forward to starting a new chapter in my life, knowing that NTSAD remains strong. I will… Continue Reading


Experts’ views on COVID-19 vaccination and the impact of the pandemic on patients with Gaucher disease (7/14/2021) - The current outbreak of the novel severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2), causing coronavirus disease 2019 (COVID-19), has become a worldwide pandemic with high morbidity and mortality in individuals with chronic disorders.1 The pandemic introduced many unanticipated challenges for patients with chronic and rare diseases, such as Gaucher disease (GD).2 GD is the most common inborn error… Continue Reading

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