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Rare Disease Report®

Batten Disease in Greece

Posted on April 24, 2017

Rare Disease Report® has published an interview with a parent of a young man who has Batten disease, who lives in Greece. This is a very worthwhile moderate-length article that allows the knowledgeable reader to compare the approach to, and care of neuronal ceroid lipofuscinoses patients between Greece and other places.

Posted in News | Tagged Batten Disease, Rare Disease Report®

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Recent Posts

  • Sanfilippo Syndrome Clinical Care International Guidelines
  • Dr. Michael Beck, Mainz GE, MPS-focused physician has passed
  • Registration is open for ADVANCE 2022: Sanfilippo Community Conference!
  • POMPE PATIENT MEETING, August 2022
  • Lysosomal Disease Network annual meeting 2022
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