This Sunday, February 28th, is Rare Disease Day, all around the world!
Events will kick off Friday, February 26th, with the University of Minnesota’s virtual presentation: “Telehealth in Rare Disease Clinical Practice and Research: The Silver Lining Now and Beyond COVID-19“. Register for the program here.
Check out other events on the official website, rarediseaseday.org and look for more information from NORD (National Organization for Rare Disorders) and NIH (National Institutes of Health).
Patients, families, caregivers, and allies have an opportunity to raise rare disease awareness through participation in events and presentations, so join in and let your voice be heard!
Tell your story, get information about treatments and resources, and come together as a community dedicated to finding cures for rare diseases!
Follow Rare Disease Day on their official facebook, instagram, and twitter feeds!