Skip to content
Lysosomal Disease Network
  • News
  • Events
  • Research
  • Resources
  • About
  • Submit

The National MPS Society and COVID-19

Posted on May 11, 2020

The National MPS Society USA has posted recommendations for patients and families concerned about COVID-19.

Posted in News | Tagged COVID-19, COVID-19 Recommendations, MPS Society

Post navigation

10 present and former LDN members to present latest research at WORLDSymposium
FSIG provides online application to assist in patient care during COVID-19 crisis

Recent Posts

  • Pilot Projects of the LYSOSOMAL DISEASE NETWORK (LDN)
  • Fellowships of the Lysosomal Disease Network (LDN) for Career Enhancement
  • Consensus recommendations for the classification and long-term follow up of infants who screen positive for Krabbe Disease – new PubMed article!
  • COVID-19 Mitigation Strategies in Pediatric Rare Disease Clinical Trials Virtual Workshop – May 7th, 2021
  • Free online CME course available on Sanfilippo syndrome

Contact Information

Lysosomal Disease Network
420 Delaware Street SE
MMC 446
Minneapolis, MN 55455
info@nulllysosomaldiseasenetwork.org

Chester B. Whitley, PhD, MD
Principal Investigator,
Lysosomal Disease Network
Professor, Dept. of Pediatrics
University of Minnesota,
Twin Cities

David CC Erickson
Informatics Director,
Webmaster
Lysosomal Disease Network

James C. Cloyd, PharmD
Co-Principal Investigator,
Lysosomal Disease Network

Brenda Diethelm-Okita, MPA
Program Manager,
Lysosomal Disease Network

Additional Info

  • Patient Organizations
  • Official List of Lysosomal Diseases
  • Submit Content to LDN
  • Sign up for PubMed Updates
  • LDN Fellowships
  • Submit RFA for Pilot Project
  • Lysosomal Disease Network Fellows
  • Contact LDN

Recent Posts

  • Pilot Projects of the LYSOSOMAL DISEASE NETWORK (LDN)
  • Fellowships of the Lysosomal Disease Network (LDN) for Career Enhancement
  • Consensus recommendations for the classification and long-term follow up of infants who screen positive for Krabbe Disease – new PubMed article!
  • COVID-19 Mitigation Strategies in Pediatric Rare Disease Clinical Trials Virtual Workshop – May 7th, 2021
  • Free online CME course available on Sanfilippo syndrome
RDCRN Logo
The Lysosomal Disease Network (U54NS065768) is a part of the National Institutes of Health (NIH) Rare Diseases Clinical Research Network (RDCRN), supported through collaboration between the NIH Office of Rare Diseases Research (ORDR) at the National Center for Advancing Translational Science (NCATS), the National Institute of Neurological Disorders and Stroke (NINDS) and National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).
© 2021 Lysosomal Disease Network