The American Health Lawyers Association (AHLA) offers a variety of free booklets that provide education about matters of interest to rare disease patients, their caregivers and family members. For example, these are just a few of the booklets available: “A Handbook for Parents: The Individuals with Disabilities Education Act”, “Guide to Legal Issues in Life-Limiting Conditions, 2nd Edition”, and “Guidebook for People with Disabilities”. These free booklets are all part of AHLA’s extensive Public Interest Series. Scroll down to the paragraph entitled Health Care Consumer.
The American Health Lawyers Association, with 13,000 members, is the nation’s largest, nonpartisan, 501(c)(3) non-profit educational organization devoted to legal issues in the health care field.