Global Genes® Offers Free Online Courses at its ‘Rare University’

Global Genes® has free online course-offerings at its ‘Rare University.’ A valuable, featured course is entitled ‘Genetics Concepts for Rare Disease Patients and Families.’ It is a completely self-paced online course – you decide when you start and when you finish. It contains the following sections:

• Genetics Concepts for Rare Disease: Eight lessons for learning about many concepts that directly relate to genetic conditions, from basic concepts such as what genes and chromosomes are, to more complex concepts such as epigenetics and multifactorial conditions.

• Family and Heredity: Six lessons for learning more about the inheritance patterns associated with genetic conditions, about genetics healthcare professionals, and information about resources to help you connect with others in the rare disease community.

• Genetic Testing: Seven lessons for learning about how genetic testing works, about different types of genetic tests that exist, and about different types of genetic testing providers.

• Scientific Advances in Genetics and Medicine: Six lessons for learning about advances in genetics and medicine, such as gene therapy, gene editing, and human reproductive treatment advances. You’ll also be able to learn about participation in medical research, such as enrolling in clinical trials.

After registering yourself at Rare University, you have unlimited access to course offerings for as long as you like – across any and all devices you use. Rare University and its course-offerings are generously sponsored by several corporations, including Illumina®Horizon Therapeutics PLCAvexisNovartis and Sanofi Genzyme.

Free Booklets Pertinent to Rare Disease Patients & Caregivers

The American Health Lawyers Association (AHLA) offers a variety of free booklets that provide education about matters of interest to rare disease patients, their caregivers and family members. For example, these are just a few of the booklets available: “A Handbook for Parents: The Individuals with Disabilities Education Act”“Guide to Legal Issues in Life-Limiting Conditions, 2nd Edition”, and “Guidebook for People with Disabilities”. These free booklets are all part of AHLA’s extensive Public Interest Series. Scroll down to the paragraph entitled Health Care Consumer.

The American Health Lawyers Association, with 13,000 members, is the nation’s largest, nonpartisan, 501(c)(3) non-profit educational organization devoted to legal issues in the health care field.