Registration is open for ADVANCE 2022: Sanfilippo Community Conference!

A virtual conference on July 7-8, bringing together families and caregivers, scientists and researchers, clinicians and therapists, advocates, biotechs, and supporters. All to engage and advance the work to help children with Sanfilippo syndrome. Registration is at no-cost.


Parents and caregivers of children with Sanfilippo syndrome don’t often get to see the many people – researchers, scientists, clinicians, biotechs, and many more – brilliant people working behind the scenes in the efforts to make a difference for children. 

Additionally, many working in the field seldom have the opportunity to spend time directly with the children and families impacted by Sanfilippo to better understand what daily lives are like and to use that knowledge to enhance their work.

ADVANCE 2022 will feature high-level collaboration between the groups, information sharing, and Sanfilippo-specific learning sessions. Topics include the role of inflammation and the immune system in Sanfilippo, new treatment approaches, Sanfilippo subtype-specific sessions, ABA and Sanfilippo, and much more.

Everyone in the Sanfilippo community is welcome, U.S. and internationally. And registration for everyone is at no cost. Register today at

We hope to see you at ADVANCE 2022!

Glenn O’Neill
Dad, Donor, President & Co-Founder
Cure Sanfilippo Foundation
803-413-0525   |

World Sanfilippo Awareness Day – November 16th

World Sanfilippo Awareness Day on Nov. 16 is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of. 

This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away.

It also honors the families of these precious children.  

It is a community-wide awareness day and not specific to any foundation or organization. 

Additional information, flyers, social media images, and more are available at